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Golf event raising funds for organ transplant patient

September 7, 2012
Special to the Reporter (sancapnews@breezenewspapers.com) , Island Reporter, Captiva Current, Sanibel-Captiva Islander

A fundraising event is fast approaching to raise funds for the Children's Organ Transplant Association (COTA) in honor of a Southwest Florida boy, Christian Hannett.

The Florida Everblades' annual Golf Tournament & Auction on Oct. 7 at the Colony Golf & Country Club will assist with Hannett's transplant-related expenses.

The family and friends of Christian challenges everyone to ask their neighbors and colleagues to join them to celebrate a miracle kid. Christian was diagnosed with Metachromatic Leukodystrophy (MLD) days before his 5th birthday in September 2011. MLD is a 1-in-100,000 rare genetic disorder that causes the white matter in the brain, myelin, to disappear.

On Oct. 27, 2011, doctors at Duke University Medical Center in Durham, N.C., performed a life-saving bone marrow transplant. The Hannett family needs an estimated $100,000 assist with transplant-related expenses and Christian's continued care.

The scramble format event tees off with a 1 p.m. shotgun start. Five player teams, four amateurs paired with a current or former Florida Everblades player or coach, will be paired together for the day.

To obtain a registration form with payment instructions and sponsor information visit the Everblades website at www.FloridaEverblades.com.

For more information about the upcoming events, or other fundraising and volunteer opportunities, contact Terry Mallow at (239) 410.8018 or terrymallow@ymail.com.

Christian's family has asked for assistance from the Children's Organ Transplant Association. One hundred percent of all funds raised are used for patients' transplant-related expenses. Additional information about COTA and Christian is online at www.COTAforChristianH.com.

 
 

 

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